United Against
Multiple System Atrophy

The Multiple System Atrophy United Research Consortium is dedicated to funding research, providing support, and raising awareness for Multiple System Atrophy patients and their families.

About MSA United Research Consortium


Mission

Our Mission

To empower patients, families, and caregivers affected by MSA through education, support, and research funding.

Research

Research Funding

We fund cutting-edge research to find better treatments and ultimately a cure for Multiple System Atrophy.

Awareness

Awareness & Education

We raise awareness about MSA and provide education to patients, caregivers, and the medical community.

Our Impact & Progress

Together, we’re making a real difference in the lives of those affected by MSA. Through research funding, patient support, and community engagement, we’re driving progress toward better treatments and a cure.

Every contribution helps us expand our reach and accelerate our mission to support patients and fund critical research.

$1M+

Raised for global MSA research

14

MSA research studies funded

18

Expert research advisors

1st

Independent MSA grants platform and community hub

Our Members

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Asociación de Atrofia Multisistémica México

En honor a nuestro padre Carlos Esquivel González, un guerrero que tuvo ATROFIA MULTISISTÉMICA, buscamos convertirnos en la primera Donataria…

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Defeat Multiple System Atrophy / Vaincre L’Atrophie Multisystématisée (Canada)

Defeat MSA/Vaincre AMS Canada is a Canadian based charity that aspires to balance patient support, medical education, public awareness, promising…

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Hope MSA

Together, we are building awareness, advancing research and giving HOPE to every life touched by MSA.

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Landsforeningen Multipel System Atrofi

Landsforeningen Multipel System Atrofi blev stiftet i 2004, og har fra starten med en bestyrelse af frivillige arbejdet for oplysning…

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National MSA Research Australia

National MSA Research Australia is committed to funding vital research into Multiple System Atrophy (MSA). The charity has a two…

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Move For MSA (USA)

Join people around the world walking, running, biking, even swimming or any kind of movement to raise awareness and funds…

Atrofia Multisistémica España

Atrofia Multisistémica España

AMES (Atrofia Multisistémica España) es una asociación fundada en 2024 por afectados de atrofia multisistémica con la intención de aunar…

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Defeat MSA Alliance US

Defeat MSA Alliance is a US-based 501(c)(3) charity dedicated to balancing patient support, medical education, public awareness, research, and advocacy.

Defeat MSA New Zealand Trust

Defeat MSA New Zealand Trust

Defeat Multiple System Atrophy (MSA) New Zealand Trust is a registered charity serving the needs of those affected by Multiple…

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The Multiple System Atrophy (MSA) Ireland Partnership

MSA Ireland Partnership intends to be an inclusive based charity which aspires to support patients, educate medical professionals, raise public…

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Defeat MSA Awareness Shoe

The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited…

Join Our Mission

Make a Difference Today

Whether through volunteering, donating, or spreading awareness, your support helps us continue our vital work in the MSA community.

Latest News & Updates

Stay informed about our progress and initiatives

Sticking With MSA – Wouter Peelaerts, Phd (Leuven, Belgium)

Apr 23, 2026

Sticking With MSA – Wouter Peelaerts, Phd (Leuven, Belgium)

Multiple System Atrophy (MSA) is a rare brain disorder that until recently was largely ignored by the research community. MSA…

“Finding Balance With MSA” – Joshua Calvert (Patient, Australia)

Apr 19, 2026

“Finding Balance With MSA” – Joshua Calvert (Patient, Australia)

My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked…

Stories from Our Community

Hear from those whose lives have been touched by MSA United Research Consortium

Donna Yost's Story donna yost story
Caregiver
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“I found Defeat MSA and MSA United when Phil was kind enough to call me and walk me through the available trials for MSA patients….”

Donna Yost’s Story

Jennifer Frost's Story jennifer frost story
Caregiver
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“MSA is a very isolating disease to patients and caregivers. Due to being a rare disease there was not a lot of information or support…”

Jennifer Frost’s Story

Lisa Bilek's story lisa bilek story
Board Member
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“When my dad was diagnosed with MSA in 2010, I remember struggling to find information on the disease itself and how my mom and I…”

Lisa Bilek’s story