MSA United Research Consortium is a US Tax-Exempt Non-Profit with 501(c)(3) approval according to the Internal Revenue Code (IRS). Contributions to the charity are deductible under 170 of the IRS Code. It is qualified to receive tax deductible bequests, devises, stocks, transfers or gifts under section 2055, 2106 or 2522 of the Code. The charity is further classified as a public charity.
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A portion of funds collected by MSA United from donations and other funding sources will be directed toward efforts to help patients currently suffering from the disease, to support the education of medical professionals and to develop awareness campaigns around the world. In order to conduct these activities, to do so in the most economically viable way and to have a greater impact, MSA United will work with both the members of the Consortium but also with other partnering organizations outside of the Consortium, to bring about our support, educational and awareness objectives. We are truly committed to the philosophy: “Many Voices, One Vision; Many Hearts, One Hope”
Another portion of funds collected by MSA United from donations and other funding sources is directed toward efforts to cure and/or slow the progress of the disease. In this regard, we foster promising research that is closest to clinical application and in order to do so in the most economically viable way, MSA United consults both with members of its own volunteer research advisory board and with others. As with all of our activities, our aim is always to maintain the highest level of professional ethics, organizational integrity and financial transparency.MSA United Research also stands out in other ways. First, MSA United Research Consortium’s directors, advisors and participating charity representatives are volunteers. There are no salaried employees. Secondly, MSA United Research is the world’s only consortium of patient organizations. This means that every dollar donated goes directly to the cause and not towards the salaries of any executive or business administrator. And lastly, MSA United Research Consortium is also the only major US nonprofit dedicated to Multiple System Atrophy which is led by someone with a confirmed biological connection to MSA. Why does this matter? Because with direct experience comes passion and a personal heartfelt devotion to the cause of defeating MSA!
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