If you are using Zoom, Teams, or Google Meets during March or anytime of the year, please use one of our MSA Awareness banners for your background, cover photo, or just share the image with your friends on Facebook and any other social media platform! Spreading awareness is crucial in the fight against MSA, as it helps educate others and encourages support for research and funding. Together, we can make a difference by raising awareness and giving hope to those battling this devastating disease.
Multiple System Atrophy United Research Consortium is a global consortium of charitable groups united in their dedication to fight Multiple System Atrophy (AMS/MSA). Our collective purpose is to support patients, educate medical professionals, raise public awareness, nurture new research and advocate for the MSA/AMS community. Operated entirely by volunteers, we are dedicated to the following goals:
- To build a world that truly supports people with MSA/AMS
- To foster better medical education about MSA/AMS
- To increase public awareness about living with MSA/AMS
- To cultivate promising research into treatments and slowing MSA/AMS
- To advance the interests of all people challenged by MSA/AMS
We invite all people around the world to walk with us, to join our life supporting cause: to speak for those who cannot, with one mind, one heart and one voice: to cure Multiple System Atrophy forever!
To build a world where people with Multiple System Atrophy are supported and empowered as individuals. We envision a future in which MSA no longer exists, where people with MSA not only survive but also thrive.
By uniting our advocacy organizations into one powerful force, we can break down barriers of care, raise awareness globally, foster promising research and finally eradicate MSA entirely! Our mission is driven by compassion, innovation, and a unified commitment to support all those challenged by MSA everyday.
Together, we can transform the world, and inspire a global movement – to MOVE FOR MSA everywhere!
To mobilize resources, raise awareness, and implement community support programs that uplift both MSA patient and their caregivers and create a lasting impact.
Please Join Us – Be A Changemaker – Let’s Defeat MSA Forever!
Defeat MSA Alliance is a US-based 501(c)(3) charity dedicated to balancing patient support, medical education, public awareness, research, and advocacy.
For more information, email us at info@msaunited.org.
Defeat MSA/Vaincre AMS Canada is a Canadian based charity that aspires to balance patient support, medical education, public awareness, promising research and community advocacy.
MSA Ireland Partnership is a charity committed to supporting patients, raising awareness, and advancing research. We unite voices across borders to speak for those who cannot — with one mind, one heart, one voice to cure MSA.
La prima organizzazione Italiana a sostegno dei malati e dei caregivers che convivono con l’Atrofia Multisistemica. Il nostro scopo è fornire supporto ed informazioni a coloro che si trovano ad affrontare questa poco conosciuta patologia …
The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The MSA Awareness Shoe is a tool for spreading awareness, increasing support for patients and their caregivers.
For Info, Email us: info@msashoe.org
Atrofia Multisistémica España es una asociación fundada en 2024 por afectados de atrofia multisistémica con la intención de aunar esfuerzos para dar una mayor visibilidad y crear conciencia sobre esta enfermedad, así como servir de apoyo a las personas afectadas por la enfermedad y sus familiares, con el objetivo de mejorar su calidad de vida.
Defeat Multiple System Atrophy (MSA) New Zealand Trust is a registered charity serving the needs of those affected by Multiple System Atrophy in New Zealand. It aspires to balance patient support, medical education, public awareness, promising research and community advocacy.
Landsforeningen Multipel System Atrofi blev stiftet i 2004, og har fra starten med en bestyrelse af frivillige arbejdet for oplysning om og forskning i MSA i Danmark. Bestyrelsen satte sig fra starten det mål, at der skulle findes god oplysning om denne relativt …
La primera organización oficial de AMS en México que beneficia la investigación para lograr diagnósticos más precisos, desarrollar nuevos tratamientos que retarden la progresión de la enfermedad y nos acerquen al descubrimiento de una cura.
National MSA Research Australia is committed to funding vital research into Multiple System Atrophy (MSA). The charity has a two fold mission: to raise funds for crucial research while also increasing public awareness of MSA. National MSA Research is a registered non-profit charity with the Australian Charities and Not-for-profits Commission (ACNC) and holds Deductible Gift Recipient (DGR) status with the Australian Taxation Office (ATO).
We’re looking for passionate individuals who want to support our mission and help our global MSA community. Whether you have an hour or a day, your contribution matters. Join us in creating positive change — one act of service at a time.
COUNTRY/REGION ADVISORS COUNCIL
Rosemary Arburthnot (Ireland, Northern Ireland)
Jennifer Frost (United States)
Brent Evans (New Zealand)
Philip Fortier (United States)
Michelle Craigen (Canada)
Carlos Esquivel (Mexico)
Vacant (Italy)
Isabelle Paquette (Quebec, Canada)
Sergei Povaliaev (Russia)
Moises Ogando (Spain)
Kieran Kelp (Australia & Oceania)
Inge Vium (Denmark)
Serhat Ozpercin (Turkey)
